It also illustrates some of the challenges we face providing great care to patients which have such a broad range of needs and past history.
It’s an eye opening look at something that many of us can’t understand based on our own experiences. Trauma Informed Care and Her My Care Concerns Document – Check out her blog for tons of trauma informed care information, but I was extremely touched be her My Care Concerns document. She reminded us that the patient should be the one in control of the sharing and informed of the sharing to avoid hurting the patient. Erin often reminded us that sometimes sharing data can actually cause more issues for the patient. Unfettered Healthcare Interoperability Can Backfire – While it’s easy for those of us in health IT to see the benefits of sharing health data. Here’s a few other lessons Erin taught me so vividly: She also introduced me to the idea of Patient Burnout in an #HITsm chat which really expanded my thinking and understanding of the challenges chronic patients face.
I love how she expanded my thinking on the idea that “ We’re All Patients” is just not true. Here at Healthcare IT Today she advocated for apps with personal health data being subject to HIPAA, educated us on Health Literacy opportunities, and shared why we shouldn’t take calculated risks with security. Plus, be sure to check out her blog, Health As a Human Right which James Elliot aptly described as a “treasure trove of information and thoughts and strategy.” James also shared a thread on her contribution to the #insulin4all movement and the modern disability movement. If you want a feel for the perspectives she shared, there’s no better place to start than her Stanford Medicine X talk which came after this letter she wrote to organizers: I’m sad to report that Erin Gilmer passed away this week.Īs many of us mourn the loss of Erin, she’s received many tributes from those who knew her on Twitter.
Buoyed by her keen intellect and helped by her law degree, she brought light to so many issues that plague us in healthcare. She’s one of the most fierce patient advocates I’ve ever known. Long time readers of Healthcare IT Today and members of the Health IT and patient advocate community on Twitter probably are familiar with Erin Gilmer.
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